It makes me so mad and breaks my heart

I wanted to shared something that my family has been hearing for the last few days alot. I am so mad at the world for the way kids with trisomy 18 and 13 are treated. These are great kids that laugh, and play, and know their families but alot of doctors and the medical world dont give them the value they deserve. I can't believe with all we have achieved medically that they cant and wont be given a chance. A life saving surgery wouldn't be considered for a child given the diagnosis of trisomy- how wrong is that. I feel that God wants them to be here or they wouldn't exist so why not do everything possible to help them. I have heard too many storied since Maddy was born in February about parents fighting for their kids to have procedures done that a non-trisomy kid would get no questions asked. Its not fair. When my husband and I started researching trisomy 18 to find out what we were facing we concentrated on the good stories of living children. They were few to be found-but even so there were some out there. I have found many more since then. I can only imagine that if pregnant women weren't persuaded to abort when trisomy was confirmed or the babies actually had easy access to life saving procedures how many happy stories we could have found. If you are reading this I appreciate you visiting my blog and ask that you share what you may have learned here and maybe do a little internet research on trisomy. Help raise awareness about what is happening to these families with beautiful children!

Oh and I would like to add that since we came home from the NICU Maddy has gotten great care at the hands of her doctors and has not been denied anything that may help her! We have been blessed by the people that have come into our lives in the last 6 months to help our baby girl!

here are some great places to start learning about trisomy 18-
www.trisomy18.org/
www.en.wikipedia.org/wiki/Trisomy
 and there are a few great facebook groups that are full of parents of trisomy kids

Maddy is 6 months old and doing so well. She has made it all the way to 7.10lbs! We are so proud of our little fighter. She is showing everyone she meets how strong she is. We have a new nurse now to come and make sure Maddy is doing what she is suppose to be doing and will be starting thearpy very soon now! Im excited to see her grow and learn. We've been seeing more of her beautiful smile around here- even big sisters Makayla and Morgan have gotten a few! We are truly blessed and I thank God everyday for this little angel in my life.