maddy celebrated her 9 birthday yesterday in the picu at ochsner hospital in new orleans. we came wednesday after finding no change with the bigger tube at the hospital we were at. she was air lifted and my husband and i made the 5 hour trip. I wrote this and never actually got done with it that day. Maddy did better at the new hospital for a couple of das. I was even able to put her 1st Thanksgiving shirt I made on her. That Sunday my husband and I made the trip back to Bossier City to see our other 2 girls and spend some time with them. It was so hard to leave Maddy that day but she was doing better on her vent pressure and they had even dropped the amount down by 5 on the amount of oxygen. We made it home around 10:30 that night and at 4:45 I received a call from the night nurse that Maddy was having lots of trouble keeping her oxygen stats up and we needed to get back. One hour outside of New Orleans we got the call our baby girl had went to be with Jesus. When we arrived we were ledto her room where she laid on the hospital baby bed dressed in a pink dress and swaddled in blankets we had brought from home with her favorite toy beside her and her little bible close to her head. They also had the praise cd we had brought playing. She had to tubes or iv's. She was just out little princess. We got to hold her and I rocked and sang our song to her one more time. Then we said goodbye to Maddy and came home to share the news with our other daughters.