My daughter has trisomy 18. It is a genetic condition where she has three of the 18th chromosome where she should only have two. In most cases (like Maddy) there is nothing you can do to cause or prevent trisomy18. Trisomy 18 affects alot of the body in different ways. Most children with this have major heart problems and feeding issues. Maddy was no different. They also have apnea issues where they stop or have trouble breathing. It can effect how they grow and develop but there are lots of happy little ones (and some older too) out there showing that with medical care these kids can survive and be huge parts of their families and communities. We love Maddy and she loves us! I would love to answer any questions I can for you and offer support if you have or are expecting a baby with trisomy 18.
No comments:
Post a Comment